AUGUST UPDATE – LEUKEMIA JOURNEY

It’s been a couple months since I’ve posted an update to my progress along this leukemia journey. A little bit has happened, but not a massive amount. Other than having my 1st transplant birthday!

On July 4th, I celebrated one year since having my bone-marrow transplant. The following week we had a little celebration to really celebrate all the great people and families that have helped support us during this journey. I even was granted a single beer reprieve, by my medical team. Just one though. 🙂

This whole process continues to feel like 3 steps forward, and 1 step back. Those single steps backwards can get frustrating, but at least I’m moving forward. I call it good math!

Currently, I’m recovering from a little bit of GVHD (graft versus host disease). If you’ll recall, I had that back in February, along with CDIF and shingles. All that together, kicked my butt, and put me back in the hospital. But weathering GVHD alone, it’s doable at home with some changes to my medications. Unfortunately, I’m back on prednisone, which sucks, but is necessary. We’ve always known that setbacks like this can recall some meds we’re happy to discontinue.

On another front of this journey, we’ve made a few family changes. Being on disability income for over 2 years has really taken it’s tole on us. Earlier this summer Deanna and I decided to have her consider looking for a part time job that would supplement my disability. After some hard work on her part, she landed a great opportunity at a small country school just outside of town, as a special education teacher’s aide. It’s a perfect fit for her, as she has a soft heart for unique kids. This also brought out the idea of taking a pause in our homeschooling adventure, with our younger two. So they’re attending that school, where Deanna works. The older two are just fine continuing their schooling at home, so I guess I’m their “teacher” now. In truth, they’re self-motivated, and really just need to be encouraged every so often.

So that’s what’s going on with us. Any questions, post them in the comments. Love ya’ll!

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Author: TREVOR

Leukemia survivor. Son of The Most High. Father. Man.

2 thoughts on “AUGUST UPDATE – LEUKEMIA JOURNEY”

  1. Hi Trevor,
    We have never met, but I heard about you from my brother and sister-in-law Damon and Janna DeLillo. My name is Nicole Kountz, I am married with 3 kids and back in Nov. 2014 I was diagnosed with T-Cell ALL (Leukemia & Lymphoma). I went through chemo and radiation and on April 20th I had my Bone Marrow Transplant from two cord bloods. It has been great to read your posts and get a perspective from someone who is farther down the road! I have been journaling my journey on caringbridge.org/nicolekountz, if your interested. Thank you for sharing your journey, it is nice to connect with someone who is going through similar circumstances. God Bless you and your family!! -Nicole

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