Hey all, I just wanted to fill y’all in on a secret. No stem cell transplant patient has smooth sailing. Everyone has some setbacks. We knew I’d have one eventually, and it’s come as no surprise.
Of course we don’t want it, and it’s inconvenient. But, it’s happening. There is no crisis, and no one is panicking about it. I received IV antibiotics yesterday, and just finished an other for today. Once I have my room, I’ll get even more, over the next few days.
They expect that I’ll spend the weekend “upstairs” as they treat my infection/fever. They’re pretty sure the infection is from my central line, which is installed in my chest. So they’re gonna pull it, once I get upstairs. Then once my fever and infection clears they’ll install a PICC line, which is another kind of semi-permanent line, so that I don’t have to be poked all the time for an IV.
Today my fever was the biggest concern, but I also had a low blood pressure, that was concerning. It made me light headed and loopy.
I’m doing ok. It was a super bummer to accept the news that I’m being readmitted. But it didn’t take long to get over. It’s more frustrating logistically than anything else. We don’t have any supplies. Deanna had to buy an iPhone charger last night, and I don’t even have any underwear, other than the pair I’m wearing.
But seriously, that’s such a minor issue that can easily be overcome. If Deanna and my VC family can’t work out some sort of handoff of important stuffs, I’m sure I could get a package of chonies from the local Target.
God is good! We continue to be cared for so well, by UCLA, family, and Element family! Our community is just so fantastic!
“How much more will the blood of Christ, who through the eternal Spirit offered himself without blemish to God, purify our conscience from dead works to serve the living God.” – Hebrews 9:14 ESV
This verse has encouraged and comforted Deanna and I both, separately and at different times this past week. I hope it comforts you too.