Another update…

OK, so I’m a little behind. I figure I get to miss deadlines. 🙂

I’m gonna cover my first two days in the UCLA Ronald Reagan Medical Center.

We got up early on Saturday, and headed down to get this party started. We, means Deanna, my mother, my father, and yours truly. My fabulous sister has taken over the duty of Carp kid wrangler. She’s up to the task.

Because it was the weekend, the plan hatched by my oncologist on the Central Coast was that I walk right into the ER, and give them the low down. So we did that. They seemed to accept this plan, and I was in an ER bed within minutes. (See below)

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Of course the tests begin all over again, as well as the lengthy personal medical histories. I say histories because every single time a new person walked in, I was asked to tell it all over again. And having not recovered my voice from the laryngitis I had during the pneumonia, it was exhausting!

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This pretty much covers my time in the ER, until my bed was finally ready “upstairs”, at around 5pm.

Guess what happened when I finally got up to the Leukemia wing? Yep, you guessed it, I was retelling my medical history again, twice. With all this moaning on, I must admit that at every step of the way, the staff have been fantastic. The ER staff were great. My first two nurses upstairs were great. The two docs who coordinated my arrival upstairs, were great.

A side note is important, that I’ll probably refer back to many times. Guess what. I hate needles. No, I HATE NEEDLES! I’m fine with you being stuck, just not me. It hurts, and it makes me crazy. I can sit still, but I just can’t stand it. Deanna has pointed out that I’ll most likely arrive at a new level of acceptance with needles, pretty soon. I can’t help but agree.

A fun story from the ER. My ER nurse had to do a unique blood draw, from an artery. No biggy, I hate them all, so this one was no different. She took care of business, and I have little to complain about. As soon as she’s done, she leans down and says, “I wasn’t going to say anything before I did that, but that was my 2nd time doing that.” Yikes! We actually all had a good laugh at that one.

So, the first day ended with me exhausted from talking so dad-gum much, all day long. But, I’m in my bed, and the process is getting started, so I could have more to complain about. Sleep wasn’t great, but it could have been worse.

On to the second day, today. I must admit, we didn’t do much today. I got my first taste of a sponge bath, but I did this one myself. I got to go for a walk, around the wing, and that was pretty exhausting  In fact, I think I over did that one. This evening’s walk was much shorter, and I kinda liked it.

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The big treat of today’s limited activities was that my sister and bro-in-law brought our kids down! It was wonderful to be with them. Seriously! Even when they were watching a movie on my mom’s iPad, I was glad to have them in the room. They did a pretty decent job behaving, considering how boring a hospital room can be.

My princess hung around a little longer, heading back later this evening with my mom. She was a treat. A couple times, when others were out on walks, etc, it was just my daughter and I chillin in the room. We were able to chat a little, and just hang. I’ll cherish her desire to visit with me, forever.

I know I won’t get to see the kids every day, and I understand. So, I’m gonna hold onto those days that I do get to see them.

On another note, I’d like to point out that I plan on sharing about this leukemia battle and how it plays out for me. A lot of these posts will be day to day, and a little therapeutic for me. For the nitty gritty, especially the numbers, etc, you’re going to need to connect with my sister, who is planning to coordinate with Deanna, to share those details accordingly.

So, yesterday’s Scripture verse that encouraged and lifted me up was…

2 Corinthians 12:9

“But he said to me, ‘My grace is sufficient for you, for my power is made perfect in weakness.’ Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.”

Today’s prayer has been…

I’m praying for strength from the Lord that I will weather this storm glorifying Him.

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Author: TREVOR

Leukemia survivor. Son of The Most High. Father. Man.

8 thoughts on “Another update…”

  1. Thanks for the update. It is nice to hear it from you. Our prayers are with you and the entire family. Hang in there and stay covered up on your walks 🙂

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  2. Trevor, you are in our hearts and prayers. We wish you the speediest of recoveries.
    Love, your cousin Ron and the rest of the Arkansas tribe.

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  3. Trevor Praying for you. I wanted to let you know I sent an email to the church The Rock in San Diego, we went there a few weeks ago, asked them to pray for you and your family. I got an email from them this is their reply: Kelly, We will be praying for Trevor and his family. God hears our cries and He is able to heal and make whole. May our mighty God heal Trevor in the mighty name of Jesus, all for God’s glory and praise.
    Love you!

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  4. Oh man, find strength where you can. Your faith is strong and is healing.
    I found out when I got my colonoscopy that my body design is the reverse of most others. It is akin to a reverse design. Sometimes a search for an artery would almost always result in a vein…
    In 1987, I got the same ailment that did in Jim Henson of the Muppets. Through inactivity I developed 4 separate blood clots in my left calf. That meant immediate treatment for the thrombosis, and 2+ years of blood tests monthly for my prescribed use of Coumadin (a blood thinner). I definitely developed a kinship for those individuals that can administer a needle without pain. The walks are very important. They break up the monotony and literally keeps you feeling better in a very constructive way.
    Trevor, I have no idea what to say to you. Get well, brother. Fight the good fight. .

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  5. It’s maddening that it isn’t possible to keep a single centralized medical history, but perhaps there are safety reasons for doing this, just in case you don’t remember until the fifth interview that you’re allergic to penicillin.

    I notice that you have refrained from discussing the wonderful hospital attire – presumably because this is a family-friendly blog.

    Praying for you.

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  6. Trevor, myself and my entire family are praying for you and your family. Thank you for your words it answers lots of questions that I’m sure your Dad is being asked over and over. I will continue to follow your journey, you are such an inspiration to others who are traveling the same path, so Thank You.. ps I’m your dad’s hairdresser if you were wondering who this person is, haha

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  7. #1 Praying for you and your family!

    #2 You need to add Google+ sign in if Possible

    #3 I assume you will be going the Chemo route…ask your Nurse/MD about getting a portacath placed. it is a central line directly into your vein/artery under your skin. That way they don’t have to find a vein each time and place an IV.

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